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She could have taken the trip of a lifetime or met anyone in the world, but instead, an 11-year-old Make-A-Wish recipient decided to give her wish away.
She’s a tiny girl with a huge heart. On Monday morning, Make-A-Wish Hawaii made Maryknoll sixth grader Skylar Soares’ wish come true.
“I felt really loved and special. It’s kind of hard to feel special when you’re in the hospital all the time,” Soares said.
Soares was diagnosed with three life-threatening medical conditions and is Hawaii’s second known survivor of a rare auto-immune disease.
“It was Job syndrome first, HLH, and then in 2011 she was diagnosed with lupus,” Soares’ mother Irma Baptiste said.
Instead of taking a trip to Disneyland or meeting her favorite actor, she chose to give away her wish.
“I didn’t really want to do anything for myself. I kind of wanted to give back,” Soares said.
“Skylar’s wish to give was pretty unprecedented for Make-A-Wish Hawaii, for a child to say selflessly I want to give my wish away,” Make-A-Wish Hawaii CEO Siana Hunt said.
Soares’ sensitive skin requires that she wear a hat at all times, even indoors. She quickly realized that she’s not the only one at risk from the sun’s rays and decided to design her own line of sun-safe hats.
“She was the CEO. From the moment she walked into that board room and she started telling people, ‘Here’s what I want to see happen’ and ‘Here’s my vision’ and ‘I need a logo’ and ‘I need marketing’ and ‘I want my people to understand why’ — just to be educated in sun safety was truly a mission for her,” Hunt said.
So the HiSky brand and logo was born and the “no hats in school” rule was broken.
“So now, everybody gets to wear one and it’s not an exception just for me. I like that everyone can wear one now,” Soares said.