‘Anya’s Law’ helps children born with facial abnormalities

Anya Maga with Representative Gregg Takayama, Governor David Ige and Representative Della Au Belatti (Photo courtesy of House Majority Communications)

A measure signed into law Thursday by Governor Ige dramatically impacts the lives of several dozen Hawaii families that include children born with cleft palates or other facial abnormalities.

In Hawaii, approximately one in every 500 babies is born with what is called an “orofacial anomaly.” For example, between 2007 and 2012, 61 babies were born with a cleft lip or palate and 83 were born with other craniofacial defects at the Kapiolani Medical Center.

Rep. Della Au Belatti, House Health Committee Chair, said it’s crucial to correct these defects, not just for visual appearance, but because this condition affects basic functions such as eating, chewing, speech and breathing. The complicated treatment to correct these kinds of birth defects usually requires multiple surgeries ranging from about $5,700 to $20,000 or more.

House Bill 174, introduced by Rep. Gregg Takayama (D-Pearl City, Waimalu, Pacific Palisades), requires health insurers to cover such orthodontic treatment, as do 16 other states.

“For families whose children have a cleft lip and palate, the range of medical, dental and other services can exceed $100,000 from birth until late adolescence,” testified Eileen Matsumoto, a registered nurse for more than 35 years.

The cost of reconstructive surgery is covered by medical insurance, but not the full cost of the medically necessary orthodontic procedures required to prepare for these surgeries, which usually amount to more than $10,000 over a child’s lifetime.

These treatment costs are already fully covered by Med-QUEST for poor families but not by private health insurers for Hawaii’s working families.

The State Legislative Auditor reports the cost to all policyholders would be minimal – probably increasing premiums by two cents to four cents per member per month, based on the experiences of California and Massachusetts.

The measure has been called “Anya’s Law” after one of its active supporters, 6-year-old Anya Maga, who testified for the measure along with her parents, who are residents of East Honolulu.

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